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Body & Soul

Advance Health Care Directives and Living Wills: What they Are, and How to Get Them for Free
By Randi Reed

You may not want to think about it, but the Terri Schiavo case spotlights the issues surrounding living wills, life support, and who has the right to determine and carry out someone's last wishes. Following is important information everyone should know. This article is not intended as a substitute for legal advice from a competent attorney.

What is a Living Will?
In general terms, a living will is a document that states your wishes in the event that you require artificial life support to survive and are unable to communicate your wishes or make your own medical decisions. A Living Will (or Advance Directive for Healthcare and Durable Power of Attorney for Healthcare) goes into effect only after two physicians declare you to be incapable of making healthcare decisions for yourself. You can revoke it at any time and can usually change your wishes simply by completing and validating a new Advance Directive for Healthcare and Durable Power of Attorney and destroying the old ones.

Do I Need a Living Will?
The Terri Schiavo case has highlighted the need for everyone to obtain a Advance Healthcare Directive or Living Will. Think you don't need one? In most states, including California, if a patient arrives at a hospital emergency room in need of artificial life support to survive, the patient is placed on it, then questions are asked later. So it's important that everyone age eighteen or over (or with emancipated minor status) have an Advance Health Care Directive to communicate your wishes in case of emergency--especially if:
  • you are not legally married to your significant other
  • you travel, drive fast cars or ride motorcycles, or engage in dangerous hobbies
  • work with pyro, stunts, or special effects
  • you have immediate family who live far from you.
  • you have a manager or agent--who likely has some form of Power of Attorney in order to make deals or sign contracts when you're not available. Having a Durable Power of Attorney for Healthcare helps avoid confusion over the extent of that person's authority.

    It's extremely important for a touring musician's or crew member's significant other to have an Advance Healthcare Directive or Living Will as well. In the event that you're far from home and your significant other becomes incapacitated, you don't want just anyone making important healthcare decisions for him or her while you're trying to get a flight out.

Never assume that your parents, significant other, or other loved ones share your beliefs about death, dying, or medical care, or that they know what your wishes would be. In discussing the Terri Schiavo case with our parents, my sister and I were surprised to discover that our parents have vastly different opinions about this than we do...and that their wishes differ greatly from what we would want. Far better to find out now, and get everyone's wishes in writing. Doing so spares your loved ones from having to make difficult decisions in the midst of an emotional crisis.

What is the Difference Between a Living Will, an Advance Directive for Healthcare, and Durable Power of Attorney for Healthcare?

In the US, the meanings of the terms "Living Will" and "Advance Directive for Healthcare" (sometimes called an Advance Directive for Medical Treatment) vary from state to state. In some states they're interchangeable names for the same document, and in others "Living Will" is considered an outdated term. Still other states consider a Living Will a document that is not as detailed as an Advance Directive for Healthcare, or not valid at all. So to be safest and cover all the bases, instead of requesting a Living Will, many experts--such as financial guru Suze Orman--advise that you obtain two specific documents:

1. Advance Health Care Directive (which states your wishes for or against life support, artificial nutrition and hydration, pain relief, and resuscitation). Sometimes this is called an Advance Medical Treatment Directive.

2. Durable Power of Attorney for Healthcare (which names the person you want to make healthcare decisions for you if you're incapacitated).

Important: There should also be a signed and dated page in the document which contains the names and contact information of everyone who will have copies of the document, so that no one can question the validity of any copies that appear. Also, in the document itself, state the purpose of any pages you're attaching, the number of pages, and sign and date this clause.

How Do I Get a Living Will or Where do I get the forms for an Advance Healthcare Directive and Durable Power of Attorney for Healthcare? Do I Need an Attorney for a Living Will? What are the Costs?

In many states, you don't need an attorney to prepare an Advance Health Care Directive and Durable Power of Attorney for Healthcare. Forms and fees vary state by state. In California, an Advance Health Care Directive and Durable Power of Attorney for Healthcare are validated either by the signatures of two witnesses who are not beneficiaries of your life insurance or estate (which costs nothing), or by a Notary Public (which typically costs less than $100.00). There are no other costs involved. An Advance Health Care Directive for California, which includes a form for Power of Attorney for Healthcare, is available at Cedars-Sinai Hospital in Los Angeles or can be downloaded free from the Cedars website at:
http://www.csmc.edu/pdf/CAAdvanceDirective.pdf

The language of the California form at the above link is easier to understand than most copyright forms. It's a very general document but has space to write in additional instructions. It also designates whom you want to make healthcare decisions for you (Power of Attorney for Healthcare), and has a section which gives or denies permission for organ donation. Other hospitals and nursing homes have the forms as well.

Forms for other states can be found free of charge at: http://www.uslivingwillregistry.com/forms.shtm. You can also check with your local hospital, nursing home, or state health department.

Choosing an Agent for Power of Attorney for Healthcare
The person you designate to make healthcare decisions for you if you are incapacitated is called the "agent." The Durable Power of Attorney for Healthcare form has a space for you to name this person, as well as alternates if that person is unable or unwilling to act on your behalf. In many cases, as with the California form above, the Durable Power of Attorney for Healthcare also gives your agent for healthcare responsibility for authorizing an autopsy and directing what happens to your remains.

Choosing your agent for healthcare is a very personal decision. You should never feel pressured to choose someone because it seems like "the right thing to do." It's vital to choose someone who's good in a crisis and who can be trusted to carry out your wishes regardless of the emotion...So you may or may not feel comfortable choosing your closest loved one. It's also important to choose someone who either has beliefs on death, dying and healthcare that are similar to your own or is willing to set aside their beliefs and opinions to carry out your wishes. Discuss your wishes with your potential agent and alternates to be sure they're willing to do this for you. (It should go without saying that anyone with a history of domestic abuse or other violence should automatically be excluded from your list of potential healthcare agents.)

Where Should I Keep the Documents?
Never keep your Advance Healthcare Directive and Durable Power of Attorney for Medical Care in a safe deposit box or bank vault; many states seal them in the event that the owner is incapacitated, rendering the documents inaccessible.

Instead, give copies to several trusted people who are good in a crisis and can be counted on to keep them in a safe place, such as your physician, attorney, manager, significant other, best friend, parents, or spiritual advisor. (If you're in a touring band, your manager should always have a copy in case of emergency.) Include in the document a signed and dated addendum page listing names and contact information of all the parties you've given copies to so it's clear how many copies are out there, and who has them. This way, there are no surprises or accusations of invalid documents by anyone in the heat of emotion. (An addendum for California which has space to list everyone you've given copies to is part of the California form linked above.)

For further information: http://www.uslivingwillregistry.com/forms.shtm

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